Media Summary: Buffy Boger and her 16-year-old daughter face a 15-18 hour day, every two weeks, in order to treat the teenager's ... i'm from Orlando Florida and I was diagnosed with Pompei Shaylee isn't your average seventeen-year-old and it's not just the fact that she has

Physical Therapy And Pompe Disease - Detailed Analysis & Overview

Buffy Boger and her 16-year-old daughter face a 15-18 hour day, every two weeks, in order to treat the teenager's ... i'm from Orlando Florida and I was diagnosed with Pompei Shaylee isn't your average seventeen-year-old and it's not just the fact that she has Approximately one in 10 Americans suffer from a rare After enduring years of tests, Julie was finally correctly diagnosed with When two-year medical student, Paul McIntosh, was diagnosed with late-onset

Title: Exercise and Nutritional Considerations for the Title: Aquatic Exercise: Applications for In this presentation, Dr Jonathan Rajan, from the Salford Royal Foundation Trust, focuses on pain in At the American Academy of Neurology (AAN) Annual Meeting in Vancouver B.C., we talked with Loren Del Mar Pena, MD, PhD, ... Dwight Koeberl, MD at Duke University talks about the latest studies being done to test gene Priya Kishnani, MD, PhD of Duke University Medical Center was instrumental in getting an orphan drug approved for

Photo Gallery

Physical Therapy and Pompe Disease
MDA Engage:  Physical Therapy, Exercise and Pompe Disease
Pompe ERT - Makes for a Long Day
A Message From Monique Griffin who lives with Pompe disease
Pompe Disease: Speech, Swallowing, and Breathing
Living With Pompe Disease – Shaylee’s Story
Pompe Disease and Gene Therapy
Behind the Mystery: Pompe Disease
Julie  - Pompe disease, knowing is half the battle
Late Onset Pompe Disease - A Patient's Marathon to Diagnosis
13. Exercise and Nutritional Considerations... with Dr. Mark Tarnopolsky
Sanofi – Living With Pompe Disease – Shaylee’s Story
Sponsored
Sponsored
View Detailed Profile
Physical Therapy and Pompe Disease

Physical Therapy and Pompe Disease

During Duke's annual late-onset

MDA Engage:  Physical Therapy, Exercise and Pompe Disease

MDA Engage: Physical Therapy, Exercise and Pompe Disease

Pompe disease

Sponsored
Pompe ERT - Makes for a Long Day

Pompe ERT - Makes for a Long Day

Buffy Boger and her 16-year-old daughter face a 15-18 hour day, every two weeks, in order to treat the teenager's

A Message From Monique Griffin who lives with Pompe disease

A Message From Monique Griffin who lives with Pompe disease

... i'm from Orlando Florida and I was diagnosed with Pompei

Pompe Disease: Speech, Swallowing, and Breathing

Pompe Disease: Speech, Swallowing, and Breathing

Buffy Boger, the parent of a 16-year-old

Sponsored
Living With Pompe Disease – Shaylee’s Story

Living With Pompe Disease – Shaylee’s Story

Shaylee isn't your average seventeen-year-old and it's not just the fact that she has

Pompe Disease and Gene Therapy

Pompe Disease and Gene Therapy

Pompe disease

Behind the Mystery: Pompe Disease

Behind the Mystery: Pompe Disease

Approximately one in 10 Americans suffer from a rare

Julie  - Pompe disease, knowing is half the battle

Julie - Pompe disease, knowing is half the battle

After enduring years of tests, Julie was finally correctly diagnosed with

Late Onset Pompe Disease - A Patient's Marathon to Diagnosis

Late Onset Pompe Disease - A Patient's Marathon to Diagnosis

When two-year medical student, Paul McIntosh, was diagnosed with late-onset

13. Exercise and Nutritional Considerations... with Dr. Mark Tarnopolsky

13. Exercise and Nutritional Considerations... with Dr. Mark Tarnopolsky

Title: Exercise and Nutritional Considerations for the

Sanofi – Living With Pompe Disease – Shaylee’s Story

Sanofi – Living With Pompe Disease – Shaylee’s Story

Shaylee isn't your average seventeen-year-old and it's not just the fact that she has

Aquatic Exercise Webinar

Aquatic Exercise Webinar

Title: Aquatic Exercise: Applications for

Pompe disease - causes, symptoms, diagnosis, treatment, pathology

Pompe disease - causes, symptoms, diagnosis, treatment, pathology

What is

For Boy With Pompe Disease, Every Active Day Is a Gift (Jane Emerson, MD)

For Boy With Pompe Disease, Every Active Day Is a Gift (Jane Emerson, MD)

William Lyons has

GSD2 Pompe - Dr Jonathan Rajan - Pompe's Disease: A Pain Medicine Perspective

GSD2 Pompe - Dr Jonathan Rajan - Pompe's Disease: A Pain Medicine Perspective

In this presentation, Dr Jonathan Rajan, from the Salford Royal Foundation Trust, focuses on pain in

Enzyme Replacement Therapy and Pompe Disease

Enzyme Replacement Therapy and Pompe Disease

At the American Academy of Neurology (AAN) Annual Meeting in Vancouver B.C., we talked with Loren Del Mar Pena, MD, PhD, ...

The Pathophysiology of Pompe Disease

The Pathophysiology of Pompe Disease

Pompe disease

Gene Therapy and Pompe Disease

Gene Therapy and Pompe Disease

Dwight Koeberl, MD at Duke University talks about the latest studies being done to test gene

Pompe Disease Treatment - We Are Not Finished Yet

Pompe Disease Treatment - We Are Not Finished Yet

Priya Kishnani, MD, PhD of Duke University Medical Center was instrumental in getting an orphan drug approved for