Media Summary: Speakers - Allison Peck & Dr. Tahseen Mozaffar Topics - Speakers: Dr. Nupur Ghoshal Topic: Understanding FTD/ALS: Future Possibilities of Therapies. Speaker: Megan Iammarino, Nationwide Children's

2022 Cure Vcp Disease Patient Care Partner Conference Day 1 Natural History Studies - Detailed Analysis & Overview

Speakers - Allison Peck & Dr. Tahseen Mozaffar Topics - Speakers: Dr. Nupur Ghoshal Topic: Understanding FTD/ALS: Future Possibilities of Therapies. Speaker: Megan Iammarino, Nationwide Children's Speakers: Brandon Feldt, Nathan Peck Topics: Opening & Welcome Presentation. Speakers: Dr. Tahseen Mozaffar, Megan Iammarino, Amber Sapp Topics: Speakers: Dr. Gerald Pfeffer Topic: Genetic Implications, Diagnosis, and Muscle Weakness

Speakers: Dr. Armelle Pindon, Dr. Conrad (Chris) Weihl, Dr. Nupur Ghoshal, Dr. Gerald Pfeffer Topic: Expert Panel DiscussionĀ ... Speaker: Amber Sapp, Casimir Topics: Casimir Speaker: Dr. Armelle Pindon Topic: Our Scientific Agenda: Accelerating Moderator: Andrea Denny Panelists: Amy Casey, Brandon Feldt, Cammie Knudsen, and Tom DeWald. Presentations by Megan Iammarino and Amber Sapp.

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2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Natural History Studies
2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Dr. Nupur Ghoshal
2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Megan Iammarino - Nationwide
2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Opening & Welcome
2022 Cure VCP Disease Patient & Care Partner Conference - Natural History Studies Q&A Panel
2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Dr. Gerald Pfeffer
2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Medical Expert Panel
2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Amber Sapp - Casimir
2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Dr. Chris Weihl
Welcome to Cure VCP Disease
2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Dr. Armelle Pindon
2022 Cure VCP Disease Patient & Care Partner Conference - Day 2 - Insurance and Life Planning
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2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Natural History Studies

2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Natural History Studies

Speakers - Allison Peck & Dr. Tahseen Mozaffar Topics -

2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Dr. Nupur Ghoshal

2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Dr. Nupur Ghoshal

Speakers: Dr. Nupur Ghoshal Topic: Understanding FTD/ALS: Future Possibilities of Therapies.

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2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Megan Iammarino - Nationwide

2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Megan Iammarino - Nationwide

Speaker: Megan Iammarino, Nationwide Children's

2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Opening & Welcome

2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Opening & Welcome

Speakers: Brandon Feldt, Nathan Peck Topics: Opening & Welcome Presentation.

2022 Cure VCP Disease Patient & Care Partner Conference - Natural History Studies Q&A Panel

2022 Cure VCP Disease Patient & Care Partner Conference - Natural History Studies Q&A Panel

Speakers: Dr. Tahseen Mozaffar, Megan Iammarino, Amber Sapp Topics:

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2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Dr. Gerald Pfeffer

2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Dr. Gerald Pfeffer

Speakers: Dr. Gerald Pfeffer Topic: Genetic Implications, Diagnosis, and Muscle Weakness

2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Medical Expert Panel

2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Medical Expert Panel

Speakers: Dr. Armelle Pindon, Dr. Conrad (Chris) Weihl, Dr. Nupur Ghoshal, Dr. Gerald Pfeffer Topic: Expert Panel DiscussionĀ ...

2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Amber Sapp - Casimir

2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Amber Sapp - Casimir

Speaker: Amber Sapp, Casimir Topics: Casimir

2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Dr. Chris Weihl

2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Dr. Chris Weihl

Speakers: Dr. Chris Weihl Topic:

Welcome to Cure VCP Disease

Welcome to Cure VCP Disease

Cure VCP Disease

2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Dr. Armelle Pindon

2022 Cure VCP Disease Patient & Care Partner Conference - Day 1 - Dr. Armelle Pindon

Speaker: Dr. Armelle Pindon Topic: Our Scientific Agenda: Accelerating

2022 Cure VCP Disease Patient & Care Partner Conference - Day 2 - Insurance and Life Planning

2022 Cure VCP Disease Patient & Care Partner Conference - Day 2 - Insurance and Life Planning

Speaker: Nathan Peck.

2022 Cure VCP Disease Patient & Partner Conference - Day 2 - How do we talk about VCP?

2022 Cure VCP Disease Patient & Partner Conference - Day 2 - How do we talk about VCP?

Moderator: Andrea Denny Panelists: Amy Casey, Brandon Feldt, Cammie Knudsen, and Tom DeWald.

2022 Cure VCP Disease Celebration Event in Atlanta - Slideshow

2022 Cure VCP Disease Celebration Event in Atlanta - Slideshow

On August 20,

Living with Ambiguous Loss in Multisystem Proteinopathies, Genetics, Grief, and the Lived Experience

Living with Ambiguous Loss in Multisystem Proteinopathies, Genetics, Grief, and the Lived Experience

Living with

2022 Cure VCP Disease Patient & Care Partner Conference - Day 2 - Living Well with VCP disease

2022 Cure VCP Disease Patient & Care Partner Conference - Day 2 - Living Well with VCP disease

Presentations by Megan Iammarino and Amber Sapp.

2022 Cure VCP Disease Patient & Care Partner Conference -  Day 2 - Closing Session

2022 Cure VCP Disease Patient & Care Partner Conference - Day 2 - Closing Session

Speaker: Allison Peck.

2021 VCP Scientific Conference - Session 1 - Introduction to VCP Disease

2021 VCP Scientific Conference - Session 1 - Introduction to VCP Disease

Thursday, September 9, 2021 @